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kaneohegirl
May 8th, 2007, 09:17 AM
My dad has just been Diagnosed with Stage 4 Non-Small Cell Lung Cancer, more than likely Adenocarcinoma (waiting for Biopsy report)

does anyone have any insight, advice, experience with this disease that you would like to share?

any personal info/experiences I would find helpful... I can find all the technical stuff on the internet but the 'hindsights' and the 'what can happens' would be helpful.... I know everyone is different but your knowledge may help make decisions that are important

thanks alot

1stwahine
May 8th, 2007, 09:22 AM
Prayers to you and your Ohana Kaneohegirl!

(((Hugs)))

Auntie Lynn

Miulang
May 8th, 2007, 11:50 AM
KG: If you really get confused and overwhelmed, you can try calling the people at Cancer Treatment Centers of America (http://www.cancercenter.com/small_cell_lung_cancer.cfm). I see their ads on TV every now and then. Asking for their advice is free;) They view cancer treatment as a wholistic problem, not like most docs who only think about the medicine part of the therapy.

Miulang

greentara
May 8th, 2007, 12:24 PM
My dad has just been Diagnosed with Stage 4 Non-Small Cell Lung Cancer, more than likely Adenocarcinoma (waiting for Biopsy report)

does anyone have any insight, advice, experience with this disease that you would like to share?

any personal info/experiences I would find helpful... I can find all the technical stuff on the internet but the 'hindsights' and the 'what can happens' would be helpful.... I know everyone is different but your knowledge may help make decisions that are important

thanks alot

Try google ~ American Cancer Society...they have discussion boards great source of information ~ helped my family when we had to deal with cancer. It's difficult to weigh quality of life and treatment. Wishing you all the best in dealing with the challanges.

TATTRAT
May 8th, 2007, 03:57 PM
Positive thought and energy to you and yours. The American Cancer Society is a wonderful resource for all sorts of advice, as stated.

Composite 2992
May 9th, 2007, 12:04 AM
I lost my dad to lung cancer and emphysema.

Also lost a cousin to lung cancer. And a good friend.

In my own humble opinon, it's not how long you live but how you relate to others that makes a difference. Knowing that people care helps a lot.

Focus on what's there rather than what will be lost.

After all, we're all destined to come to an end. It's just a matter of how. Not just when.

greentara
May 9th, 2007, 08:13 AM
Kaneohegirl, I just saw a piece on the am news about Yoga breathing exercises being extremely useful for Lung Cancer patients. Breathing actually changes neuro pathways of the brain and helps lung capacity. The designer Donna Karan's husband had Lung Cancer and some alternative methods along with conventional methods really helped him. Never had to deal with lung cancer but both of my parents died of other forms of cancer so I can kind of understand what you are going through. Stay strong your family really needs you now.

Miulang
May 9th, 2007, 08:40 AM
KG: Go ask the oncologist if he's ever heard of this drug (http://www.cancercompass.com/cancer-news/1,12524,00.htm):

April 23, 2007

SUNNYVALE, Calif. -- Pharmacyclics, Inc. today announced that the U.S. Food and Drug Administration (FDA) has filed the company's New Drug Application (NDA) for Xcytrin(R) (motexafin gadolinium) Injection. The Prescription Drug User Fee Act (PDUFA) date for completion of review by FDA is December 31, 2007. The Company is seeking approval to market the drug for the treatment of non-small cell lung cancer (NSCLC) patients with brain metastases (i.e., cancer that has spread to the brain from another part of the body).

"We are very eager to work with the Agency to complete a thorough and fair review of the extensive data in our NDA," said Richard A. Miller, MD, President and CEO of Pharmacyclics. "We and our investigators, outside experts and patient advocates believe our data support the efficacy and safety of Xcytrin for the treatment of brain metastases for patients with non-small cell lung cancer and justify a comprehensive review by the Agency. We believe it is in the best interests of patients to do everything we can to make this drug available for patients with this terrible disease for which few treatment options exist


Miulang

Vanguard
May 9th, 2007, 08:56 AM
Years ago, I lost a family member to non-small cell lung cancer. I pray for you, your dad, and your family members.

Is your father hospitalized? Are you considering alternative therapies?