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Thread: Tattrat's trials

  1. #101
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    Default Re: Tattrat's trials

    Well, next Friday, is going to be "the final day", as far as I am concerned. I will check in to the hospital for a round of tests, tests I would have thought were well established at his point, but oh well. I guess after 2000 years, this is why it is still a practice.

    I thought I would know this week about the chemo thing, next Friday will be my final screening. Bone density test, full kidney and liver work up, just seeing if I am cool to do what hey gotta do. I am keeping my fingers crossed for a "medicine only" route, and after looking at he treatment, I am only missing 3 meds that I am not on, so I will see what happens. If I do radiated treatment, then all bets are off.

    My dad, he might be here this week over the holidays ,so I am hoping I cn touch base. this is admittedly, the first time in a LONG time, I have felt "alone".

    Once again, and as will be the course, it is now a game of hurry up and wait. Things will progress in a 4 week cycle from here on out basically. The only thing stopping me from selling everything off and pulling a solo "Honeymoon with myself" is that I might need the facilities I have available here.

    I have thought a lot, I might have thought too much, but I tell you what, I don't regret things, I wouldn't change things, and if anything, it has strengthened my resolve to keep on keepin on. And, I will rely on my career to allow me the chances to ravel to more places, experience more things and I will savor it more, witha new found appreciatation for things I might have otherwise taken for granted.


    ***Spell check is not doing it's job, I apologize for my any typos
    flickr

    An email from God:
    To: People of Earth
    From: God
    Date: 9/04/2007
    Subject: stop

    knock it off, all of you

    seriously, what the hell


    --
    God

  2. #102
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    Aug 2008
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    Default Re: Tattrat's trials

    I hope you and your dad are able to get together. Yes, we are here, but it's not the same as having a physical being there with you.

    I'm glad you've made peace with things and with yourself. I think you've made a good decision to stay put until you lick this. Then you can set off again, strong and healthly. I hope with all my heart that you pass all your tests and will not have to get radiated.

    Can't think of anything creative this time


  3. #103
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    Jul 2007
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    976

    Default Re: Tattrat's trials

    Prayin' for you and that new pup, Tat.

    Much love and long-distance support. Cindy

  4. #104

    Default Re: Tattrat's trials

    Hey Tatt, we HTers are still hanging in there with you, and sending you our "vibes" of strength. I hope you a few good days during Thanksgiving-time to recharge your mental batteries. You're doing good, keep marching towards recovery, we are along side you.
    Now run along and play, but donít get into trouble.

  5. #105
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    Default Re: Tattrat's trials

    There's only two that I know of that can impact the outcomes you face, Tatt.
    One is whomever you conceive of as "God" - and the other is yourself.

    I won't impose my beliefs on you, but I will tell you that positive thoughts regarding a situation will generate positive outcomes more often than not, and that any appeals to whatever you conceive of as God can generate positive outcomes.

    There is one God, though people have been taught many names by pretenders. Ask God for help, as I will, for you. Believe you are deserving. I believe you are.

    My prayers go out for your health.

    K
    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  6. #106
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    Default Re: Tattrat's trials

    Atta boy, Tatt!
    Ongoing prayers...
    Ongoing positive thoughts...
    You can do it.

  7. #107
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    1,671

    Default Re: Tattrat's trials

    hang in there man; looking forward to your next post....
    525,600 minutes, 525,000 moments so dear. 525,600 minutes - how do you measure, measure a year?

  8. #108
    Join Date
    Jun 2007
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    Honolulu
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    Default Re: Tattrat's trials

    I think of you every day Tatt. Hoping for the best.

  9. #109
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    Winnetka, CA (So Cal)
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    Default Re: Tattrat's trials

    Proverbs 3:5 & 6...XO

  10. #110
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    Haiku & Iolekaa Valley(s)
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    Default Re: Tattrat's trials

    Tatt you remain in my thoughts and prayers. Stay strong and positive
    you are NOT ALONE. XOXO Aloha - "Leash"

  11. #111
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    Default Re: Tattrat's trials

    Bumpity bump. . . just for those that keep me in mind(and I love you and thank you all):

    I was supposed to start my first series of injections tomorrow, BUT, that was because my original appointments were thrown off by the 24inches of snow we got LAST week in the big ol storm. . . NOW, things were thrown off because of Christmas, and I am not sure what is going down. I have neither gotten confirmation or declination of the appt. I am heart broken(insert sarcasm).

    There have been a bunch of ups and downs, but haven't felt self righteous enough to bump this, because I don't want it to be all "TATTRAT/Jon" involved, if that makes any sense. . . it is just the net, and I know I have a strong support crew, and HT is part of that crew. I won't bore/concern those further with the "latest and greatest", I will just leave it at, it is what it is, I have not/will not throw in the towel yet, and will continue to deal with this hurdle the only way I can and that is a daily exercise in many practices.

    I am thinking right now, that I might try to look into booking tickets to get back to the 808 in maybe(HOPEFULLY) April. I am now over the hump as far as work is involved, and need to start listening to my body, and take some time off. I will have 4 weeks+3 day to burn up, so why not, right?
    flickr

    An email from God:
    To: People of Earth
    From: God
    Date: 9/04/2007
    Subject: stop

    knock it off, all of you

    seriously, what the hell


    --
    God

  12. #112
    Join Date
    Aug 2008
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    Former resident of Ewa Beach
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    937

    Default Re: Tattrat's trials

    We will never think you're that self-involved. This is your thread, and you didn't start it, after all. Look how many posts it's gotten!

    Once the snow melts, call about your appointments. I know they suck, but just to make sure everything's still on track. We're all worried about you! Then if all's well, go to Hawaii! Go, go!! 3 weeks on the beach is just what you need!

    Can't think of anything creative this time


  13. #113
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    Default Re: Tattrat's trials

    SG's right, Tatt. This thread is all about you and your progress. Please feel free to share what you want or not share, as the case may be.

  14. #114
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    Default Re: Tattrat's trials

    when you get back here, you can be sure there'll be a fun get-together and you'll be required to wear a funny hat! ;-)
    525,600 minutes, 525,000 moments so dear. 525,600 minutes - how do you measure, measure a year?

  15. #115
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    Default Re: Tattrat's trials

    Well, it has been a while, and I thought I may owe some of my HT Ohana an update, so here goes. . .

    After next Friday, I will have 1, yes ONE more chemo session to go!!! The pills(Etoposide) I have been taking biweekly have treated me rough. . .really rough. I thought it would be something I would have gotten use to, but not really. My last progress report was iffy. I am showing response, but not as much as my docs have wanted. My primary care doctors believes it is because I jumped right back into work as soon as I could. I told her that I wa going crazy feeling like I was useless, NEEDED to get back to work(for financial and mental reasons), but unfortunately, I feel like perhaps I should have been listening to my body more. ***side note: Every see how easy it is for a doctor/doctors to tell you you can't work? I mean, do their bills pay themselves??*** I will be glad to get this part of treatment over, and anxiously await my results from the next series of CT scans and what have you. I am really REALLY not trying to go to radiated treatments, and with any luck, maybe these devils spawns of pills have dome what they are intended to do.

    For the sarcoid, my pulmonary tests revealed that I am functioning on about 78% of my lungs. I have been, and will continue to be on aggressive steroid treatment to hopefully stop the progression, and with any luck halt what is already going on, so fingers crossed9yet again).

    I have been more and more on the positive side. I have to be. granted, the bad days(mentally) are still there, and the physical side of things can be discouraging, but I know that the darkness of these clouds can only last so long. I am going to be glad, rather then mad, and stay merry.

    With any luck, I may be back out on O'ahu late September, not for moving back status, but as a tourist:-(. Will be glad to get back though, at any rate.

    Aloha
    flickr

    An email from God:
    To: People of Earth
    From: God
    Date: 9/04/2007
    Subject: stop

    knock it off, all of you

    seriously, what the hell


    --
    God

  16. #116
    Join Date
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    Default Re: Tattrat's trials

    Thx for the update, Tatt. Sorry to hear that your recovery isn't exactly where your docs would like it to be...and that you're not letting that stop you from staying positive. We're staying positive, too.

  17. #117
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    Default Re: Tattrat's trials

    September - Party time?
    "Democracy is the only system that persists in asking the powers that be whether they are the powers that ought to be."
    Ė Sydney J. Harris

  18. #118
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    Default Re: Tattrat's trials

    Tatt,
    I watched my wife go from 90%, to 80% down to %50% lung capacity, wearing Oxygen 24/7.
    I took her to California for surgery and she's now back up to 90% and building that with exercise and aerobics. She survived. Have faith and hope. Expectations count.

    K~
    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  19. #119
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    Default Re: Tattrat's trials

    well, it was a year ago today I was diagnosed and was in the hospital . . . what a FAST year!

    As of late, things have "stabilized", which is better then getting worse, but not the improvement I was hoping for.

    I still continue to get blood work done on a bi-weekly basis to monitor kidney and liver function and to watch cell counts. Lungs are meh. I am constantly on a steroid inhaler but hell, I am still breathing. Being back at work full time has been great though!! A very welcome distraction.

    will update this post later when I have a bit more time.

    Thanks for all the support you have given me!!
    flickr

    An email from God:
    To: People of Earth
    From: God
    Date: 9/04/2007
    Subject: stop

    knock it off, all of you

    seriously, what the hell


    --
    God

  20. #120
    Join Date
    Apr 2008
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    Wherever I am, I'm there
    Posts
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    Default Re: Tattrat's trials

    Tatrati, you da bomb! Keep puttin' one foot in fron of da other.
    Peace, Love, and Local Grindz

    People who form FIRM opinions with so little knowledge only pretend to be open-minded. They select their facts like food from a buffet. David R. Dow

  21. #121
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    Default Re: Tattrat's trials

    Stable is good. Improvement is...gooder! Thank goodness for good but we'll keep praying for gooder!!!

  22. #122
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    Honolulu, Hawai'i
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    Default Re: Tattrat's trials

    Oh........yeah!

    1stwahine
    Be AKAMAI ~ KOKUA Hawai`i!
    Philippians 4:13 --- I can do all things through Christ who strengthens me.

  23. #123
    Join Date
    Mar 2005
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    1,671

    Default Re: Tattrat's trials

    yahoooo! tanks fo keeping us updated ;-)
    525,600 minutes, 525,000 moments so dear. 525,600 minutes - how do you measure, measure a year?

  24. #124

    Default Re: Tattrat's trials

    Hey...can't knock breathing.

  25. #125

    Default Re: Tattrat's trials

    We continue to wish you improved health!
    Now run along and play, but donít get into trouble.

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