Page 3 of 4 FirstFirst 1234 LastLast
Results 51 to 75 of 91

Thread: HEY!

  1. #51
    Join Date
    Nov 2008
    Location
    Kahalu`u Stream
    Posts
    2,933

    Question Sweet heavenly parental unit!

    Quote Originally Posted by tutusue View Post
    She didn't state which groups she's already contacted. Based on that, then we might be able to offer suggestions.
    Good call, susie Q2!

    Coe one dear one, let us know what you HAVE tried and we can sort out things you may have missed.

    Information is POWER, and the more you know the more you.... uh... someone come up with a rhyming verb, OK? (show? grow?)
    It's all lingustic manipulaton anyway,. so be true to your own self!!!!!!!!!!

    1. Where do you want to go?
    2. How do you think you can get there?
    3. GO FOR IT!!!!!!!!!!!!!!!!!!!!!!!

    Keep us in mind. We are here to offer advice (someties not so good), but YOU must make the decisions.

    We are just incompetent advisors.

    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  2. #52

    Default Re: Sweet heavenly parental unit!

    Quote Originally Posted by Kaonohi View Post
    We are just incompetent advisors.
    And with us, you get what you pay for - garans.

  3. #53

    Default Re: HEY!

    HTers are limited in what we can offer as advice, because we are not professionals. Your physician(s) are the ones who can best help, or they make referrals to others who have the professional ability to help.

    Remember that prescription drugs, over-the-counter drugs, herbals and supplements can interact with each other and with other substances. Your medical team is who needs to be helping you. Not casual posters on a public forum, who might unintentionally give you dangerous "home remedies".

    If you feel your doctors are not responding to your inquiries, and if you are dealing with Queens, here is link that explains their staffing. Find the one that best describes what you need, and call Queens to speak with them.
    http://www.queensmedicalcenter.net/p...alth-care-team

    If you are dealing with Kaiser, try their customer service center for Oahu: 808-432-5955, and ask for a patient advocate or service coordinator.

    And, as it has already been suggested, let us know what other resources you have tried (ACS, etc), and maybe someone will have an additional suggestion for a professional organization or group or individual that might be able to help.
    Now run along and play, but donít get into trouble.

  4. #54
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Cancer support websites...

    Aches & Pains
    (through out our lives) knows no time!!.

  5. #55
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Post My Letter...


    To: Survey Processing Dept.

    This is my very first treatment I have ever had, & I expected a lot from professional doctors that would help me along the way to make me comfortable & not to continue to let me wonder & say to my face "it's normal" or any type of bullsh!t that is told to me from professional doctors such as Doctor E. Bieniek in Queens Hospital (1301 Punchbowl St. Honolulu Hawaii 96813).

    Yes granted, Doctor E. Bieniek did talk to me (Alone), although I wanted my husband there to be with me, & that particular day he just could not, for some unseen reason. I made mention that to her, & she said that she would reiterate EVERYTHING that she spoke to me again to my husband & I, the next day she saw us, BUT she did not!!. I had every faith & intention of her that she would speak to the both of us again, before my first treatment would start, when THAT NEXT TIME did come, I had forgotten all of the conversation that Doc. Bieniek had talked to me about.

    So....

    as each of 4 to 5 treatments were going by, I kept making mention that my skin was really hurting & bothering me from the inside of my skin, she keeps looking at me & my skin, to see any discoloration & saying to me & telling to my face "it's normal" etc, with no clue as to what the conversation had transpire!!.

    Finally!!, the very last time I had spoken to Doctor Eva Bieniek, possibly on my 5th treatment that she had reminded me part of my conversation that she had spoken to me that I wanted a shorter time of 4 weeks of treatment, as oppose to 6 weeks, while all the while I was telling everyone that I know, that it was 6 weeks (30 working days worth) that I would have for my treatment, & still had no clue all the while I was having my treatment of the difference of dosage of 25% for 4 weeks versus 16% for 6 weeks, up until the last conversation I had with Doctor Eva Bieniek!!!. I always been making mention that I was having discomfort, & no reminder to as to why that is, but only the fact that "it is normal", etc. & she did not re iterate again like she promised me, & she did not explain to my husband & I the difference of dosage & possibly the difference of discomfort I may have!!!. I am very disappointed in my very own doctor, & I am very disappointed in the Queens Hospital on how it is handled, & it is suppose to be a professional company, & she is suppose to be a professional doctor????.

    I was never given any copies of anything that is verbally explained to me at all!!!. I made mention to her that I really wanted my husband to be there with me while she explained to me about my treatments, & she did not complied to the next day meeting with my husband & I to reiterate ALL of what she talked to me about the next time she saw us!!.

    My rating of over all for that, would be VERY POOR!!, (for the professionalism, & the company itself all together) and I am not very sorry at all!! I would not ever recommend her & this Queens Hospital/company to anyone at all, & when I do hear of it, or if when the conversation do arises about Queens & Dr. E. Bienik, I will make sure to explain to them of my BAD EXPERIENCE, and for them to look else where as oppose to going to Queens & having Dr. E. Beiniek as their doctor!!! I am very ashamed of it all at this point!!!. very poor indeed!!!.

    My left Breast is inflamed very much, & it continues to hurt a lot!!, & I am, not given anything as to my discomfort, only that I should buy/use this type of product &/or is encouraged to said product to all patients. No help from my doctor what so ever, & no help from my doctor as to any research for me to help with my discomfort at all!!.

    Aloha.
    This is my first unfinished draft letter which will be sent out as soon as I am finished editing it & making spell check etc. So, it is pretty much ...

    enough said to this all.

    It will be sent out to the Survey Processing Dept. & to Queens.

    As I was reminded after my 5th treatment, I was so angry!!

    At this point, I don't care if I doubled everything &/or mentioned things twice. I will be editing some stuff before it is sent out. I am just showing you pretty much what went on. Thank you for letting me share this. Aloha.
    Last edited by Serenity; June 10th, 2011 at 09:10 PM.
    Aches & Pains
    (through out our lives) knows no time!!.

  6. #56
    Join Date
    Sep 2005
    Location
    Wah-key'-key
    Posts
    10,390

    Default Re: HEY!

    Using profanity in a letter of complaint isn't necessary. If you want to be taken seriously by Queens then substitute the word "bullsh!t" with something more appropriate.

  7. #57
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Smile Re: HEY!

    Quote Originally Posted by tutusue View Post
    Using profanity in a letter of complaint isn't necessary. If you want to be taken seriously by Queens then substitute the word "bullsh!t" with something more appropriate.
    Thank you for that. I will be doing some editing & spell check before it is mailed out. I just wanted to show what went down, & I just didn't want to wait for the final touches of my edited letter. sorry.
    Aches & Pains
    (through out our lives) knows no time!!.

  8. #58
    Join Date
    Sep 2005
    Location
    Wah-key'-key
    Posts
    10,390

    Default Re: HEY!

    Quote Originally Posted by Serenity View Post
    Thank you for that. I will be doing some editing & spell check before it is mailed out. I just wanted to show what went down, & I just didn't want to wait for the final touches of my edited letter. sorry.
    Ya know what, Serenity? It's a great stress reliever to pour out your angry feelings in the first draft of a complaint letter making it as ugly and profanity laced as you like. Then, wait a day. Go back and edit the letter until it states all the facts without the angry emotion. Often that takes more than one edit. But it's worth it as you will be take seriously by the letter's recipient. Good luck.

  9. #59
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Re: HEY!

    Quote Originally Posted by tutusue View Post
    Ya know what, Serenity? It's a great stress reliever to pour out your angry feelings in the first draft of a complaint letter making it as ugly and profanity laced as you like. Then, wait a day. Go back and edit the letter until it states all the facts without the angry emotion. Often that takes more than one edit. But it's worth it as you will be take seriously by the letter's recipient. Good luck.
    Awwww , Thank you very much. . Aloha.
    Aches & Pains
    (through out our lives) knows no time!!.

  10. #60
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Change of Doctor@Queens...

    I Changed radiation doctor, (I talked to the doctor in Kaiser that recommended Bieniek, & I told her about Bieniek, & how I was treated) I guess that's the main thing that I was able to have a different doctor, even though its a Male doctor.. I asked for a woman doctor, when I asked about it, I was told that they don't have enough woman doctor, & one of them is on Vacation. I had to get one that was the only one on call that worked on my particular time that I usually go to. I guess they only have more men than woman in Queens. Although, the new doctor was far more informative than Bieniek ever was. The new doctor still can't really suggest anything more than what I already have & am using .

    Ohhh, I will still intend to send off that letter when I am finish editing it. Have not gotten back to it, hubby & I have been busy with appointments & such.

    My left Chest is still inflamed & seems to get worse each time I go, & I still have been getting the same answer to my problem(s) of sore muscle tissues . sigh.

    I wish I didn't have to take the damn thing . GAWD!!.

    I was given the number (bosom buddies) [or something like that], I was so busy today & had to wait on some calls that I could not get to it.

    Hopefully soon.

    Ohh, by the way... Bieniek has been in Hawaii as a doctor from the mainland for one year, so I was told, but she has been a doctor in the mainland longer than a year or so. Well, good for her :-/.

    June 13, 2011 Monday.

    Aloha.
    Aches & Pains
    (through out our lives) knows no time!!.

  11. #61
    Join Date
    Nov 2008
    Location
    Kahalu`u Stream
    Posts
    2,933

    Default Re: Change of Doctor@Queens...

    At least you are doing something, taking action. Radiation therapy is no fun, and the side-effects can be very distressing and debilitating, but you just have to power through it, unless you have another option.

    For all we're worth, you got us here, and sounds like you now have access to a group for some comparison and some strategies. Go for it.
    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  12. #62
    Join Date
    Nov 2008
    Location
    Kahalu`u Stream
    Posts
    2,933

    Default Re: Change of Doctor@Queens...

    Please excuse....
    Last edited by Kaonohi; June 14th, 2011 at 11:32 AM. Reason: oops, duplicate post!
    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  13. #63
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Re: Change of Doctor@Queens...

    Quote Originally Posted by Kaonohi View Post
    At least you are doing something, taking action. Radiation therapy is no fun, and the side-effects can be very distressing and debilitating, but you just have to power through it, unless you have another option.

    For all we're worth, you got us here, and sounds like you now have access to a group for some comparison and some strategies. Go for it.
    Awwww Thank youuuu!!!.
    Aches & Pains
    (through out our lives) knows no time!!.

  14. #64
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Unhappy DAMN!!!.

    Side affect of what I am having &/or what I may have .

    http://www.aboutcancer.com/bre4b.htm

    http://www.cancer.gov/cancertopics/p.../Patient/page3

    IT FRGN HURTS!!

    Anyone got any idea at all?? How to help to keep it from hurting more?? my doctor(s) got nothing for me :-(.
    Aches & Pains
    (through out our lives) knows no time!!.

  15. #65
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Exclamation Re: Change of Doctor@Queens...

    Quote Originally Posted by Serenity View Post

    I was given the number (bosom buddies) [or something like that], I was so busy today & had to wait on some calls that I could not get to it.

    Hopefully soon.

    June 13, 2011 Monday.

    Aloha.
    I couldn't call (bosom buddies) today. Hubby & I were so busy. Time sure flies too fast, but not fast enough for me (in regards to my radiation ). Hopefully sometime Wednesday (15th).

    I am suppose to be finished sometime in July when ever 6 weeks is up.

    Aloha.

    June 14, 2011 Tuesday 8:50 pm
    Aches & Pains
    (through out our lives) knows no time!!.

  16. #66
    Join Date
    Sep 2005
    Location
    Wah-key'-key
    Posts
    10,390

    Default Re: HEY!

    Quote Originally Posted by Serenity View Post
    [...]
    Anyone got any idea at all?? How to help to keep it from hurting more?? my doctor(s) got nothing for me :-(.
    Amati said it best, Serenity:
    Quote Originally Posted by Amati View Post
    HTers are limited in what we can offer as advice, because we are not professionals. Your physician(s) are the ones who can best help, or they make referrals to others who have the professional ability to help.

    Remember that prescription drugs, over-the-counter drugs, herbals and supplements can interact with each other and with other substances. Your medical team is who needs to be helping you. Not casual posters on a public forum, who might unintentionally give you dangerous "home remedies".[...]
    You're medical questions might be better addressed to the specialized support groups that you've already mentioned. Unfortunately, if your doctor has nothing left to offer you, you may have to do what Kaonohi mentioned above.

  17. #67
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Smile Re: HEY!

    Quote Originally Posted by tutusue View Post
    Amati said it best, Serenity:

    You're medical questions might be better addressed to the specialized support groups that you've already mentioned. Unfortunately, if your doctor has nothing left to offer you, you may have to do what Kaonohi mentioned above.
    Thanks.
    Aches & Pains
    (through out our lives) knows no time!!.

  18. #68
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Unhappy Re: HEY!

    The "Bosom Buddies", no longer exist :-( !!, although, I guess I will just have to try for those 2 website, if & or when I can. sigh!! :-(.

    There is a "support group". BUT, the only meet once a month !! what~ever!!. SIGH!!. chau!!
    Aches & Pains
    (through out our lives) knows no time!!.

  19. #69
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Re: My Letter...

    Quote Originally Posted by Serenity View Post
    This is my first unfinished draft letter which will be sent out as soon as I am finished editing it & making spell check etc. So, it is pretty much ...

    enough said to this all.

    It will be sent out to the Survey Processing Dept.
    I edited my letter, & took out that word : "B.S.", & it just got longer, who cares (if it is long), I just want to get it out there!!, AND once I am done with my radiation.. I will find an address &/or location for Queens, & I will send that edited letter off to them too!!.

    ohhh, by the way, I may not come back again to this site, just F.Y.I. , until when evers again. This will be my last update, including that thread in regards to our junk fridge!!.

    Have a good 2011. Aloha.

    June 17, 2011 Friday 9:30 pm.

    BYEeeeeee........
    Aches & Pains
    (through out our lives) knows no time!!.

  20. #70
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Thank youuu!!!

    Ohh....

    before I log off until indefinitely again...

    Thank you sooo much for those who tried to help me, & to give me websites & such in regards to my radiation etc. (YEAH!!! you know who you are ) Thanks again soo much, that really means a lot to me!!!

    bye. June 17, 2011 Friday 9:41 pm (2nd to the last post).

    Aches & Pains
    (through out our lives) knows no time!!.

  21. #71
    Join Date
    Nov 2008
    Location
    Kahalu`u Stream
    Posts
    2,933

    Exclamation Re: Thank youuu!!!

    Quote Originally Posted by Serenity View Post
    Ohh....

    before I log off until indefinitely again...

    bye. June 17, 2011 Friday 9:41 pm (2nd to the last post).
    You better be back!

    Another option for chronic pain is a chronic-pain-management group. I went through one of these groups at Kaiser and was able to cut my pain medications almost in half.

    There's always another alternative, another strategy, as long as you don't give up.

    I'll tell you more privately.

    K
    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  22. #72
    Join Date
    Nov 2008
    Location
    Kahalu`u Stream
    Posts
    2,933

    Default Re: Thank youuu!!!

    "Serenity has exceeded their stored private messages quota and cannot accept further messages until they clear some space."
    Be Yourself. Everyone Else Is Taken!
    ~ ~
    Kaʻonohiʻulaʻokahōkūmiomioʻehiku
    Spreading the virus of ALOHA.
    Oh Chu. If only you could have seen what I've seen, with your eyes.

  23. #73
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Thumbs up Re: HEY!

    July 12, 2011 Tuesday...

    Today is offically makes my last day for radiation , yes I finally made through, with the thanks MOSTLY to my hubby who have been there for me, & have been pushing me to go when the times I really didn't want to go, because I was in so much pain, that it seemed like everything I seem to throw at the doctors for me to use that I could not use !! At least now, I can use what ever the heck I want & no one can tell me I can't. HALE LUJA!!

    Ohhhhh.....

    I just wanted to thank those people here who tried to post & to some how help me, I thank you very much :-)!! Thank you to those who helped me, & you know who you are .

    Aloha. :-)
    Aches & Pains
    (through out our lives) knows no time!!.

  24. #74
    Join Date
    Jun 2004
    Location
    Oahu, Hawaii.
    Posts
    1,422

    Post I am sorry Kaonohi...

    Quote Originally Posted by Kaonohi View Post
    "Serenity has exceeded their stored private messages quota and cannot accept further messages until they clear some space."
    I am very sorry about that. I clogged up my inbox for the longest time, with good reasons, too. I had a crazed b!tched out lady who would not stop sending me hate mail, & if I did report her, she may retaliated more back to me with a vengeance, so, that is why I just kept my inbox clogged up for the longest time, & NEVER cleared it up. I figure that kept me safe that way, & she could not send me Private messages, & if she wanted to, it would have to be in public view, & I don't think she wanted the whole world to see it, so, I figure, it was a win win all the way around . lol. See, Kaonohi, there is a purpose for almost everything I do . I am sorry for it being clogged up, though. chau. Aloha :-).
    Aches & Pains
    (through out our lives) knows no time!!.

  25. #75

    Default Re: HEY!

    Anyone know: Does putting someone on your "ignore" list prevent their Private Messages from coming through?
    Now run along and play, but donít get into trouble.

Page 3 of 4 FirstFirst 1234 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •